My Child is Just a Child!

One day, back in 1983, I was collecting Ruth from nursery. The headteacher had been glad to have Ruth in her powerchair in this mainstream school from the age of 3. She stopped me as I came through the door and asked for a word. Not about Ruth, I discovered, but to ask my advice… Continue reading My Child is Just a Child!

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Some thoughts on … Nutrition for people with Spinal Muscular Atrophy (SMA)

In general, intentionally putting on weight when you have SMA is only a good idea if the weight is useful muscle (although there is an important exception to this idea below). Increasing the amount of fat on a person's body is adding 'dead-weight', the body will only use it as nutrition in lean times and,… Continue reading Some thoughts on … Nutrition for people with Spinal Muscular Atrophy (SMA)

Life in a family business… with the wrong second name.

  18 months ago I joined a Family Business. For those who aren't familiar with Dragonmobility, I joined one of the most 'family' family businesses there is. It's warm, friendly, intimate... and most importantly, more than a little idiosyncratic. While I could go on for pages and pages about Dragon – it's dynamics and characters… Continue reading Life in a family business… with the wrong second name.